The Times, They Are a-Changin’

While I understand people encounter writer’s block, I often laugh it off, like I’m knocking on wood. It doesn’t affect me, I won’t give it power.

Every time I have thought of picking up the laptop to write, post traumatic brain injury (TBI): my wife’s, not mine, I shudder. The last three posts were related to it, and I can’t seem to get beyond that. It was traumatic, not just to her, but also to me. I struggle to take/make time for myself and get out of constant caregiving [hibernation] mode. The injury made me hypersensitive to her needs, and getting out of that mode is more difficult an adjustment that I would have believed possible. Maybe it’s just age and an empty-nest syndrome without ever having had kids.

I’ve also resisted believing things are better. I feel if I acknowledge how much better she is, and she’s practically all better, something will slide and my expectations will be let down, instead of constantly amazed like they are now. The migraines are almost non-existent at this point; they were almost constant for 3 years. I can’t even imagine a world where my head hurt that much for that long. She’s starting to be able to handle places with people: coffee shops, restaurants; this is a gradual re-introduction. She can’t drive yet.

I Was … Delayed

Today is the second anniversary since Saumya’s traumatic brain injury (TBI). Two years ago she received an accidental bump to the head causing damage to the left side of her noggin. You may have noticed a lapse in regularity and frequency of my writing. I’m sorry, it’s not you; it’s me.

It has been a challenging two years. Not only has it had its share of health issues for us to deal with: constant migraines, nausea, seizures (thank God they’re over), various sensitivities, countless hospital visits, on and on; but it has changed the course of our lives. During that week two years ago in 2013 Saum was filling out her paperwork to Harvard Divinity School for a PhD program. We were to move to Boston this summer. Those plans are now scuttled. In the last two years we have: been out see to one movie, had two outings with our group of friends, been on one trip involving an airplane that didn’t go well and she’s been to restaurants maybe twice. My only regret: we were getting to know some new family in the Twin Cities which I haven’t seen much of since. But this has been more of a challenge for her as I have not had many of these restrictions.

Two Songs for Saumya

Saumya

People keep asking me how I’m doing dealing with my concussed wife. Thank you very much. I’m doing fine myself, really. Gone is the anger of the past, anger at the disease of Endo, which is particularly hard to deal with. Pain is tough, and it wears a person down, the person going through it and those around them.

That’s not to say it’s all love and roses. It is extremely difficult to see the woman I love, going through one of the most difficult times of her life: when her brain checks out. With that, I have two songs that help me cope: The Afghan Whigs: The Slide Song and The National: About Today. Both are likely about break ups or more specifically drifting apart, neither of which we are going through, but the distance is real. When Saum checks out, when the headache gets bad and confusion and amnesia set in, we are distant. I reach for her, I hold her – I love her, but she’s just – gone!

What’s my name?

What’s my name? It sounds like a philosophical question; something existential. It has taken on new meaning for me.

Where are we? I’m not asking because I don’t know, or am trying to divine a meaning, but it’s a repeated question.

Saum has a concussion. Sometimes she’s getting better; sometimes there is a slide backwards. She will forget events, names of people and pets, what room she’s in. This is scary, mostly for her, but anytime the memory goes it’s also scary for me. Today, she couldn’t remember the name of our dog, Barnabas. We made a sign for her to remember.

Second Class Citizen: Thank You

My last post Second Class Citizen was a plea to vote no on the Minnesota constitutional amendments being proposed: a limiting of the definition of marriage and Voter ID. I’d like to say “Thank You” that both measures were defeated in Minnesota.

I truly believe both proposed amendments would be a limit on individual freedoms that I hold dear. Last Tuesday made me proud to be a citizen of this great state and our great nation. Minnesota, you made me proud.

Second Class Citizen

Our freedom and liberty are at risk. During this election, the biggest threat to America is not coming from outside the US in the guise of foreign terrorists or an invading army; it comes from within America itself. In Minnesota two amendments are proposed to change my state’s constitution, but this threat is also on the ballot in many other states across the US this year.

Both threats are an attempt to get an electoral majority to limit the rights and freedoms of a smaller group of Americans. In our brief history as a nation, through countless struggles by courageous people our democracy has learned how to protect the rights of certain minorities. Those struggles have led me to believe that an experienced democracy learns how to protect and value minority rights; a less mature democracy threatens and controls the rights of minority groups.

Americans, Religion, My Brother, and Me

By Jen Foley. This is a guest post from a good friend of mine. It originally appeared on Facebook and is reprinted here with permission.

I guess I need to put a little background down as full disclosure: my baby brother is gay (I never suspected it growing up because I never thought about who my brother would love or find attractive.  Eww.  Gross. That's my BROTHER.) . My first experience in religion and spirituality was at our Episcopalian church (I've had the opportunity to explore both in many different places since then. I believe.).  And I despise confrontation (except with family - sorry, family).

There is a lot of painful dialogue going on in this country, and on Facebook, right now.  And name calling. I cannot understand how friends can be so hurtful to one another.  Perhaps my words forward will hurt some of my friends, but that is not my intent.  I only hope to explain why I get so emotional about this. Remember, I HATE confrontation, but sitting silently just makes me a coward.  I admire too many people like Martin Luther King, Jr. and Gandhi to remain so. Anyway.  I'm breaking my rule.  I'm saying something political before this November's election is done.  If you want to discuss this with me - that's fantastic.  But if you become cruel, abusive, and will not civilly listen to another person's point of view, I will have to stop the discussion.