Sunday, September 1, 2013

Two Songs for Saumya

The Slide Song by The Afghan Whigs on Grooveshark

Dark River Farm 101Saumya

People keep asking me how I’m doing dealing with my concussed wife. Thank you very much. I’m doing fine myself, really. Gone is the anger of the past, anger at the disease of Endo, which is particularly hard to deal with. Pain is tough, and it wears a person down, the person going through it and those around them.

That’s not to say it’s all love and roses. It is extremely difficult to see the woman I love, going through one of the most difficult times of her life: when her brain checks out. With that, I have two songs that help me cope: The Afghan Whigs: The Slide Song and The National: About Today. Both are likely about break ups or more specifically drifting apart, neither of which we are going through, but the distance is real. When Saum checks out, when the headache gets bad and confusion and amnesia set in, we are distant. I reach for her, I hold her – I love her, but she’s just – gone!

Tuesday, July 9, 2013

What’s my name?

What’s my name? It sounds like a philosophical question; something existential. It has taken on new meaning for me.

Where are we? I’m not asking because I don’t know, or am trying to divine a meaning, but it’s a repeated question.

Saum has a concussion. Sometimes she’s getting better; sometimes there is a slide backwards. She will forget events, names of people and pets, what room she’s in. This is scary, mostly for her, but anytime the memory goes it’s also scary for me. Today, she couldn’t remember the name of our dog, Barnabas. We made a sign for her to remember.

Thursday, April 4, 2013

Feel the Pain

The best quote I heard last week, “this Vodou stuff isn’t for pussies.” Thanks Mambo, I needed that. My solace, the song that’s gotten me through this period is Dinosaur Jr’s Feel The Pain. (Best video ever.)

Dinosaur Jr.–Feel the Pain

On New Year’s Eve I had dinner with friends, and then we went to Heart of the Beast for an amazing New Year’s celebration. Everyone was having a great time, but something in me was off – amiss. I just couldn’t get into the festive mood. A feeling was there, something was going to happen and it wasn’t going to be good. A few days later the trouble began.